Blog

How will we approach evaluating the CHIRON toolkit? Lessons from other disciplines helps guide us toward meaningful assessment by Shaun Kalweit and Megan Doerr

The challenges and opportunities that come with having a personalized virtual counterpart by Jineta Banerjee, Ann Novakowski, Drew Duglan, and Milen Nikolov

Why Creative, Wild Ideas can Help us Solve the Mysteries of Neurodegeneration by Zoë Leanza and Drew Duglan

Introducing the CHIRON Trustworthiness Calculator, a component of the CHIRON Toolkit designed to support researchers' self reflection on their research practice by Jasmine McNealy, Maile Tauali'i, Carly Marten, Astha Kapoor, Joon-Ho Yu, and Megan Doerr

A real-world walkthrough of using AI software assistants to save hours of manual work by Thomas Yu, Drew Duglan, and Brad Macdonald

The CHIRON toolkit is built and ready to pilot by Carly Marten and Megan Doerr

CHIRON scholars Anouk Ruhaak and Joon-Ho Yu team up to explore social license to operate, proposing a novel pathway to community consent by Anouk Ruhaak, Joon-Ho Yu, and Megan Doerr

CHIRON scholar Jasmine McNealy considers community consent as a requirement for the ethical conduct of biorepository research by Jasmine McNealy and Megan Doerr

Understand the hurdles faced when managing valuable research assets, as well as some new opportunities that can support data-sharing efforts by Anna Greenwood, Ann Novakowski, Drew Duglan, and Adam Taylor

CHIRON scholar Melissa Creary considers the "speed of trust" in biorepository-enabled research: what indicators researchers should use to guide when and how to engage with communities by Melissa Creary and Megan Doerr

Get clarity on the validity of your files in a way that is simple, scalable and lightning fast by Brad Macdonald, Thomas Yu, and Drew Duglan

We evaluate the Code's Principles and Commitments for their clarity, relevance, completeness, conciseness, robustness and adaptability by Ann Novakowski, Megan Doerr, Drew Duglan, and Susheel Varma

CHIRON scholar Anouk Ruhaak discusses what prompts communities to evolve and how change could impact the validity of a community's consent over time by Anouk Ruhaak and Megan Doerr

CHIRON scholar Joon-Ho Yu explores how researchers might identify when they need to invoke the consent of a community, even in the context of biorepository-enabeled research by Joon-Ho Yu and Megan Doerr

CHIRON scholar Maile Tauali’i guides us on the why and the how of building researchers’ capacity to limit group harm, the role of research institutions and regulatory bodies, and community power in biorepository contexts by Maile Tauali'i and Megan Doerr

What the latest client updates mean for the performance and sustainability of your data management by Bryan Fauble, Drew Duglan, and Thomas Yu

CHIRON scholars Astha Kapoor & Sam Moore explore the contours of what constitutes community in a biorepository context, how we might ensure representativeness, and what governance limits, if any, should be considered given the indefinite lifespan of these resources by Astha Kapoor, Samuel Moore, and Megan Doerr

How we have engaged academic and community experts as leaders in Community Health Interests for Researchers & Oversight Networks (CHIRON) by Carly Marten, Samuel Moore, and Megan Doerr

Developing and piloting a novel toolkit for researchers, ethics boards, and data access committees to consider group interests in biorepository research by Megan Doerr

Our Experiences with Cloud Computing Platforms to Aid Data Operations by Thomas Yu and Drew Duglan

Join us as we work to design, build, and refine representative, fair, and inclusive data governance practices by Megan Doerr

The NIH is soliciting feedback from the biomedical community. Here's what we think by Robert Allaway, Adam Taylor, Anna Greenwood, Jineta Banerjee, Solveig Sieberts, Jake Albrecht, Luca Foschini, and Susheel Varma

A scientific approach to troubleshooting 504 gateway timeout errors for schematic APIs by Lingling Peng

Sage Bionetworks' take on best practices for developing re-usable research software in open science by Thomas Yu, Drew Duglan, Robert Allaway, Jineta Banerjee, Brad Macdonald, Bryan Fauble, Nick Grosenbacher, Jenny Medina, Thomas Schaffter, Jessica Britton, Sarah Chan, Milen Nikolov, Adam Taylor, and Sonia Carlson

Forays into open science by Hui Xin Ng

A guide for databank builders, funders, governments, researchers, and communities by Megan Doerr and Astha Kapoor

A case study in using ChatGPT to extract rare disease data from the literature by Robert Allaway, Christina Conrad, Sasha Scott, Ann Novakowski, Jineta Banerjee, and Julie Bletz